BOARD OF DIRECTORS: DIRECTOR
“ULF saved my life and my family’s when my daughter was diagnosed. I want to do the same for others,” says Margaret. That’s why she joined the ULF Board in 2022. Her daughter has Vanishing White Matter Disease/Childhood Ataxia with CNS Hypomyelination. Margaret has been involved with ULF since 2008.
In a career as executive and strategist for marketing agencies, Margaret has worked with Accenture, American Hospital Association, Amgen, Baxter, Biomarin, Bluebird Bio, Global Genes, GSK, Herman Miller, Humana Hospitals, Illumina, Motorola, MPN Research Foundation, NORD, Time Warner Cable, Shire, Target, Viropharma, Vitara Therapeutics, and McDonald’s. Her consulting work has addressed several Leukodystrophies, Cystic Fibrosis, Duchenne Muscular Dystrophy, HAE, Hemophilia, Huntington’s Disease, Hypoparathyroidism, and Idiopathic Pulmonary Fibrosis.
Margaret likes to learn goals and objectives of an organization, find the strengths and gaps, and then jump in to add value. For ULF, she wants to create a “win” for everyone – caregivers, researchers, pharma companies, and ULF.