GliaConnect has launched a new global patient registry for individuals and families affected by microgliopathies such as ALSP, BANDDOS, and Nasu-Hakola Disease.
In partnership with Sanford CoRDS, this registry helps bring together patients, families, and researchers to advance understanding and treatment of these rare disorders. The data collected will help identify symptoms, improve care management, and accelerate research toward better treatments and potential cures.
Participation is free, confidential, and open worldwide. Each participant’s data is protected through strict privacy safeguards, including de-identification and compliance with GDPR regulations.
Why participate?
- Contribute to critical research on microgliopathies
- Help shape future treatment and care strategies
- Join a global effort connecting patients and scientists
If you or a family member has been diagnosed with a microgliopathy, you can enroll in the registry today.
👉 Learn more here
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