https://us02web.zoom.us/j/84341309797?pwd=WnE0S3BFYkdNZ1N0L1lVSEdmQy95QT09

Join us for an educational and discussion webinar focused on recognizing Caregiver Burnout and ways to take care of yourself - as you continue to take care of your loved one with leukodystrophy. Panelists: Marla Chapleau, mother to Aiden affected by MLC David Flores, father to Joshua affected by 4H Margaret Halter, wife to John …

Caregivers Burnout Panel Read More »

  https://us02web.zoom.us/meeting/register/tZcoduqprDgrHd1737IA0GXtrb5fOpQTtqWS

https://us02web.zoom.us/meeting/register/tZ0ucu-trjgsGNcfKkX2yML4FA9sCaqstRC2

https://us02web.zoom.us/meeting/register/tZ0qd-uqpjgoHtPBh2F91AO9VMZlvMMNx0TD

**This session will be geared towards fathers for Father's Day** https://us02web.zoom.us/meeting/register/tZYrfu-upzovGtH_E8PNaaLHbxNoeWjqbEky  

For more information: https://adld.center/

  The Harry and Jeanette Weinberg Building at 1741 Ashland Avenue, Baltimore, MD 21205 Please join the Kennedy Krieger Institute and Cure LBSL as they co-host a weekend of hope, updates, and education at the 4th biannual LBSL International Conference.   Leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation – or LBSL - …

Cure LBSL: Patient & Scientific Conference Read More »

https://us02web.zoom.us/meeting/register/tZErcOGorDktGtTXhhDyS4CYudQYODskfGL1

https://axdsummit2024.com Connections that Matter. The AxD community - patients, scientists, clinicians, and advocates - will be meeting August 2 - 4, 2024 in Philadelphia at CHOP. From the organizers: The AxD Summit will take place beginning the evening of Friday, August 2, and continue all day Saturday, August 3, at The Children's Hospital of Philadelphia! …

Elise’s Corner: AXD Family Summit 2024 Read More »