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United Leukodystrophy Foundation
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10 events found.

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Today
  • November 2024
  • Sun 24
    Featured November 24, 2024 @ 1:00 pm CST

    Caregivers Support Group

    Register here https://us02web.zoom.us/meeting/register/tZAkcu6tqzojG9QDAaqPyml1YvS8skoO83qg  

  • December 2024
  • Sun 1
    Featured December 1, 2024 @ 1:00 pm UTC-6

    Mental Health Over the Holidays – WEBINAR

    As we approach the holiday season, it is important to remember that holidays can be stressful. This stress can worsen symptoms of a mental health condition, such as depression, anxiety, and loneliness. Please join Sarah Stoney, MSW, LCSW for an informative presentation and discussion on strategies to cope with holiday stress. Sarah Stoney, MSW, LCSW …

    Mental Health Over the Holidays – WEBINAR Read More »

  • Sun 8
    Featured December 8, 2024 @ 12:00 pm CST

    Caregivers Support Group

    Register here

  • January 2025
  • Mon 20
    caregiver support group 1-20-25
    Featured January 20 @ 7:00 pm CST

    Caregivers Online Support Group

    Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Jamie Barlow and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can …

    Caregivers Online Support Group Read More »

  • February 2025
  • Sun 2
    Featured February 2 @ 1:00 pm UTC+0

    ULF Webinar: Family Planning as a Carrier

    Join us for an insightful webinar, "Family Planning as a Carrier," hosted by Julie Cohen, ScM, CGC from Kennedy Krieger Institute. This webinar will offer valuable information and a supportive space for carriers and their families to learn, ask questions, and feel empowered in their family planning journey. Whether you are beginning to explore family …

    ULF Webinar: Family Planning as a Carrier Read More »

  • Sun 9
    Featured February 9 @ 12:00 pm CST

    Caregiver Online Support Group

    Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one …

    Caregiver Online Support Group Read More »

  • March 2025
  • Sun 16
    Featured March 16 @ 3:00 pm UTC+0

    ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence

    Digestive issues related to leukodystrophy can be challenging across the ages and particularly with children. Please join Dr. Nichole Jaffe, a Pediatrician and Complex Care physician at Children’s Hospital of Philadelphia, who will provide an indepth discussion of the various digestive issues children and adolescences face and how to address them. Meeting Details:Sunday March 16th …

    ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence Read More »

  • Mon 17
    Featured March 17 @ 7:00 pm UTC+0

    Caregiver Online Support Group

    Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassador Margaret Halter, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding …

    Caregiver Online Support Group Read More »

  • April 2025
  • Sun 13
    Featured April 13 @ 12:00 pm UTC+0

    Caregiver Online Support Group

    Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Memeber Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one …

    Caregiver Online Support Group Read More »

  • May 2025
  • Mon 19
    Featured May 19 @ 8:00 pm UTC+0

    Caregivers Support Group

    Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can …

    Caregivers Support Group Read More »

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Contact the ULF

1440 W Taylor St, Suite 4297
Chicago, Illinois, 60607, USA
(815) 748-3211
office@ulf.org

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