Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors, Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both […]
Catherine (Catie) Becker is a Pediatric Nurse Practitioner at Massachusetts General Hospital (MGH). Catie received her master’s degree in Pediatric Acute/Chronic Advanced Practice Nursing from the University of Pennsylvania. She has worked in the MGH Leukodystrophy clinic since 2011, working with a multidisciplinary team caring for both pediatric and adult patients with leukodystrophy. Presented by: […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors, Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding and challenging. […]
Activities and Fitness for the Whole Family! Join the United Leukodystrophy Foundation for an inspiring and informative webinar designed for families, adults, and children living with Leukodystrophies, as well as the loved ones and friends who walk beside them on this journey. This session will explore meaningful ways to support physical health, emotional well-being, and […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both […]
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by Ambassadors Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding and challenging. […]
Tai chi is a mindful movement practice that improves relaxation skills, mental focus, and physical alignment. With nearly 15 years of tai chi practice and more than two decades as a research physical therapist for people with neurodegenerative disorders, Jen is enthusiastic to offer classes in tai chi that are accessible to all ages, abilities, […]
