February 6 @ 2:00 pm - 3:00 pm EST Please join us for a new community call facilitated by Jillian Smith and Katie Mullen on Sunday, February 6th at 2PM EST for all ALD Parents and Caregivers. Parents and caregivers of children with any ALD phenotype (Newborn Screening diagnosis, cerebral ALD etc.) are welcome to …
ALD Connect: Community Call: ALD Parent and Caregiver Support Read More »
Unfortunately, our webinar about Advocating and Supporting for Your Student with an IEP, originally scheduled for this upcoming Wednesday, needs to be rescheduled. We are working with the speaker to determine a new date. When we have a new date chosen, we will notify you by email. You will not need to re-register for the …
ULF Webinar: Supporting and Advocating for your Child with an IEP Read More »
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
