ULF Research Grant Program

Every year, the ULF welcomes researchers from all over the world to submit their project proposals for funding. Applications are accepted from June 1 to the beginning of October. The Medical and Scientific Advisory Board’s Grant Committee reviews the applications during October and November, and the applicants are informed of their decision in December. Applicants will be notified of their application status following the December Board Meeting. 

Applications involving leukodystrophies research with budgets up to $30,000 (plus up to 10% indirect costs) are welcome to apply. The ULF Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. Funding will be awarded by the end of December and extend for one year. 

To apply: Download Applicaiton and submit Grant Application electronically to [email protected].

Funded investigators will be invited to present their research at a future ULF Scientific Symposium in the Chicagoland area. 

Deadline is Tuesday, October 1, 2024. All applicants will receive notification on the status of their submission by December 20, 2024.

ULF-Funded Research Projects

$ 765,452.00
in grant money
awarded to date

30 Projects Supported

Global Impact, projects
are funded domestically & internationally

The ULF began funding research projects in 2010. So far, the ULF has funded over $765,000 in leukodystrophy research projects. Thanks to a generous donation from Hugo and Ann Moser, we were able to establish an endowment that generates the funds that we allocate for research every year.

If you make a donation to the foundation that is “research restricted,” this is where your funds go! Every year, we take a look at how much has been donated to the research endowment (general or specific leuko) to guide where the funds accurately.

*Project funds with an asterisk designate a project that was funded with donations specifically allocated for that type of leukodystrophy.

YEAR	RESEARCHER	INSTITUTION	LD TYPE	AMOUNT
2023	Daniel Segal	Tel-Aviv University	Krabbe	$33,000
2023	Marjo van der Knaap	Amsterdam UMC	VWM	$30,000*
2023	Ann Moser	Kennedy Krieger Institute	Various	$20,000
2022	Cristina Cereda	ASST Fatebenefratelli Sacco, "V. Buzzi" Children’s Hospital	AGS	$33,000
2022	Ann Moser	Kennedy Krieger Institute	Various	$20,000
2022	Marjo van der Knaap	Amsterdam UMC	VWM	$31,940*
2021	Vivi Heine	Amsterdam UMC	Cerebral ALD (cALD)	$30,000*
2021	Marjo van der Knaap	Amsterdam UMC	VWM	$38,000*
2020	Akshata Almad	Children's Hospital of Philadelphia	Aicardi-Goutieres Syndrome	$33,000
2020	Thomas Durcan	McGill University	Vanishing White Matter	$16,500
2020	Keith Van Haren	Stanford University Medical Center	Cerebral ALD (cALD)	$16,500
2019	Amer Alam	University of Minnesota	ALD	$33,000
2019	Joshua Bonkowsky	University of Utah	ALD	$13,000*
2019	Markus Hofer	University of Sydney, Australia	AGS	$33,000
2019	Paul Watkins	Kennedy Krieger Institute	ALD	$8,671*
2018	Alessandro Michienzi	University of Rome, Italy	AGS	$33,000
2018	Amy Waldman	Children's Hospital of Philadelphia	Alexander Disease	$33,000
2017	Ernesto Bongarzone	University of IL at Chicago	Krabbe	$33,000
2017	Reena Kartha	University of MN	ALD	$15,000*
2017	Mark Sands	Washington University (Kansas)	Various	$33,000
2017	Natasha Snider	University of NC at Chapel Hill	Alexander Disease	$33,000
2016	Tracy Hagemann	University of WI	Alexander Disease	$33,000
2016	Quasar Padiath	University of Pittsburgh	ADLD	$33,000
2016	Deborah Renaud	Mayo Clinic	AMN	$3,841
2015	Adeline Vanderver	Children's National Health System	Various	$20,000
2015	Weston Mille	University of MN	ALD	$6,000
2015	Ian Duncan	University of WI	PMD	$35,000
2014	Ian Duncan	University of WI	PMD	$35,000
2014	Fabrice Dabertrand	UVM College of Medicine	CADASIL	$25,000
2010	Phyllis Faust	Columbia University	Zellweger	$5,000