webinar Archives - United Leukodystrophy Foundation

ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence

Digestive issues related to leukodystrophy can be challenging across the ages and particularly with children. Please join Dr. Nichole Jaffe, a Pediatrician and Complex Care physician at Children’s Hospital of Philadelphia, who will provide an indepth discussion of the various digestive issues children and adolescences face and how to address them. Meeting Details:Monday Jan 20th …

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ULF Webinar: Family Planning as a Carrier

Join us for an insightful webinar, “Family Planning as a Carrier,” hosted by Julie Cohen, ScM, CGC from Kennedy Krieger Institute. This webinar will offer valuable information and a supportive space for carriers and their families to learn, ask questions, and feel empowered in their family planning journey. Whether you are beginning to explore family …

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Mental Health Over the Holidays – WEBINAR

As we approach the holiday season, it is important to remember that holidays can be stressful. This stress can worsen symptoms of a mental health condition, such as depression, anxiety, and loneliness. Please join Sarah Stoney, MSW, LCSW for an informative presentation and discussion on strategies to cope with holiday stress. Sarah Stoney, MSW, LCSW …

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WEBINAR: Meet The Ambassadors

At ULF’s June conference, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy, and are therefore, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost, alone, and uncertain as to where …

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ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence

ULF Webinar: Family Planning as a Carrier

Mental Health Over the Holidays – WEBINAR

WEBINAR: Meet The Ambassadors

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