sPECIAL aNNOUNCEMENT: Marc Nolan partners with ULF
cELEBRATING lIFE'S mOMENTS, oNE STEP AT A TIME.
The United Leukodystrophy Foundation (ULF) is proud and excited to announce a partnership with Marc Nolan, a Chicago-based footwear brand, who is launching a new campaign with us “Celebrating life’s moments, one step at a time.” Marc Nolan announced our partnership to their customers today!
Through this collaboration, we will celebrate women in ULF’s community illustrating their strength, compassion, confidence, and gratitude through storytelling, photos, and videos of them “celebrating life’s moments,” while also showcasing Marc Nolan’s collection of zebra stripe shoes, the Roxie Zebra Print Mary Janes and the Gloria Zebra Print Ankle Boot. The campaign will be conducted November 2025 through February 2026, ending with Rare Disease Day.
A partnership with a compassionate and community-focused brand, such as Marc Nolan, aligns with ULF’s mission and values of creating meaningful personal connections to support families affected by leukodystrophy. This collaboration will provide vital resources that will help ULF expand our family support programs and raise awareness about leukodystrophy to a wider audience.
ULF is grateful to Sebastian Malczewski, Marc Nolan CEO & Founder, for his continued commitment to our mission and to the support of our families since 2022 and now in a formalized partnership that will shine a light on leukodystrophy through our “Celebrating life’s moments, one step at a time” campaign.
Thank you for sharing our good news with us and for helping to spread the word about this partnership.
With warm regards,
Diane Fennimore
Executive Director
United Leukodystrophy Foundation
Marc Nolan x United Leukodystrophy Foundation
We are partnering with the United Leukodystrophy Foundation (ULF) to support families affected by Rare Neurological Diseases.
For every sale of the Roxie Zebra Print Lug Mary Jane’s and the Gloria Zebra Print Stiletto Ankle Boot, 50% of profits will go to support ULF as part of their “Celebrating life’s moments, one step at a time” campaign.
“At Marc Nolan, our mission goes beyond creating exceptional footwear; it is about building a community and making a meaningful impact. Having been affected by leukodystrophy within my family, I have been inspired by ULF’s tireless work and the incredible stories of strength and resilience from the families they serve. We are proud to formalize our partnership and use our platform to shine a light on this important cause through our “Celebrating life’s moments, one step at a time” campaign.
– Sebastian Malczewski, Marc Nolan CEO & Founder
About the United Leukodystrophy Foundation
Leukodystrophy is a group of more than 50 rare genetic neurodegenerative diseases that affect infants, children, and adults worldwide. ULF is a non-profit 501(c)3 organization established in 1982 and for more than 43 years has funded research, provided patient and family support, and raised awareness to improve the quality of life for those living with this rare genetic neurodegenerative disease. For more information, visit www.ulf.org
The Significance of the zebra
The zebra is a symbol of rare diseases because in medicine, zebras represent uncommon answers. Medical students have been taught to look for horses rather than zebras when diagnosing patients, meaning they should look for more common diseases first. With 1 in 10 Americans affected by a rare disease, awareness is crucial!
– Sebastian Malczewski, Marc Nolan CEO & Founder