The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted through November 1. The Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. Funding will be awarded by December 31, 2015 and extend for one year. Researchers must use the ULF Research Grant Application Template and submit applications electronically. Funded investigators will be invited to present their research at a future ULF Scientific meeting.
Legislation requiring the Illinois Department of Public Health to provide all newborns with screening tests for the presence of adrenoleukodystrophy (ALD) under a new law sponsored by Illinois State Senator Dale Righter (R-Mattoon) was signed August 19th by Governor Bruce Rauner. “Screening for ALD at such an early stage will help save lives,” Righter said. “All too often, those with ALD are diagnosed too late for treatment to work. It’s a terrible disease, but this law helps us get out in front of it and save our children.” ALD is a deadly genetic disease that affects one in 18,000 people. It more severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons, the nerve cells that allow us to think and to control muscles. “ALD appears mainly in childhood, especially between the ages of four and ten.” Righter added. “That’s why it’s essential to
The UnitedHealthcare Children’s Foundation is seeking grant applications from families in need of financial assistance for their child’s health care treatments, services or equipment not covered, or not fully covered, by their commercial health insurance plan. Qualifying families can receive up to $5,000 per grant with a lifetime maximum of $10,000 per child. Children must be ages 16 or younger, and families must meet economic and have a commercial health insurance plan. Parents or legal guardians may apply for grants at www.UHCCF.org <http://www.uhccf.org/> , and there is no application deadline. http://www.uhccf.org/apply/learn-more-about-medical-grants/grant-application -criteria/
Congratulations to the winners of our 2014 Annual Benefit Drawing! Jeffery P. of McKees Rocks, PA won the Orange Lake/Disney time share, Mary K. of Bay Head, NJ won the hand made quilt by Anita Lewis and Lynn N. of Schaumburg, IL won the Wisconsin Dells time share. Thank you to everyone for your support!
Congratulations to Dr. Ian Duncan of the University of Wisconsin – Madison, School of Veterinary Medicine research grant award recipient of $35,000.00!
ULF wins RK Dixon $5,000 Make My Non-Profit Run Better award!
As announced at our annual meeting in Baltimore, we are now soliciting grant applications to support research in the leukodystrophies. Applications will be accepted now through October 15, 2014. All competitive applications will be reviewed by an expert committee for scientific merit, feasibility and potential contribution toward advancing the understanding and treatment of leukodystrophies. The maximum $35,000.00 grant award includes up to 10% of the requested funds for indirect costs, i.e. direct costs + indirect costs = $35,000.00. We anticipate funding one grant for up to $35,000.00 total costs (including indirect costs). Funding will be awarded by December 31, 2014 and extend for one year. Researchers must use the ULF Research Grant Application Template listed below and submit applications to our office electronically (email@example.com). It is expected that the research supported by this grant will be presented at a future ULF Scientific meeting. ULF Research Grant Application Template
Our 2014 Annual Benefit Drawing is underway. To see the letter, please click here: 2014 Benefit Drawing Letter To print additional entry forms, please click here: 2014 Benetif Drawing Tickets
We are pleased to announce that the $25,000.00 CADASIL Research Grant is being awarded to Fabrice Dabertrand, Ph.D. of the University of Vermont College of Medicine.
The MLD Natural History Study is seeking to improve the understanding of MLD and its progression in children under 12, in an effort to advance future treatment options. The study provides families with the opportunity to connect directly with doctors who specialize in MLD and to contribute to research that may benefit the MLD community at-large. Additional information about the Natural History study can be found at www.unitedformld.com , www.shiretrials.com, or www.clinicaltrials.gov.