News

Obituaries in 2017

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2017. Bloxom, Thomas Duane Borodychuk, Olivia Kay Bostock, Mark Cooper, Kelly Joyce Cotsipoulos, Chris Dean, Kolton Kyle Devers, Tyler Michael Caine Dorn, Joan Edwin, David Engbers, Gabriel Jordan Ewen, Barbara M. Fleming Family Harris, Rick Lee LaPlace, Janet Leblang, David Maloney, William "Bill" Michael Meyer, Andrew Moore, Latavia Michelle Moore Moore, ...read more

In Memorial or Honorarium – December 2017

The ULF received donations in memorial or honorarium for the following during the month of December 2017. We apologize for any inadvertent emittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Blake Andrews: Kyle Roan Phillip Andrews: Kyle Roan Harrison Botta: Erik and Jennifer Botta The ...read more

2017 Research Grant Awardees

Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. The number of grant applications have consistently grown in the past years, and this year was no exception. Submissions from all over the country as well as internationally were ...read more

2017 Benefit Drawing Winners

This year's Annual ULF Benefit Drawing winners have been chosen! We had a special Halloween visitor to the office this year to pull the winning tickets: 2-year-old Clark dressed up as Carl from the movie UP!                   The winners are... • $500 Visa Gift Card - Patrick M. of Virginia • Rolling iPad Stand ...read more

Dr. David Edwin

We at the ULF wish to send our sympathy to the family of one of our main contributors to our annual ULF family conference who passed away in June. His obituary is below. Dr. Edwin has been a contributor addressing the psychological needs of our families and how they can cope with ...read more

Dr. Wolfgang Koehler wins 2017 Dr. Hugo Moser Service Award

Congratulations to Dr. Wolfgang Koehler of Fachkrankenhaus Hubertusburg gGmbH in Wormsdorf, Germany!  He is the recipient of the 2017 Dr. Hugo Moser Service Award for his decades-long commitment to the United Leukodystrophy Foundation and to affected families and for his advancements in leukodystrophy research. This award was presented to Dr. Koehler ...read more

5K & Volleyball

The United Leukodystrophy Foundation sends out a great big THANK YOU to Debbie & Pat Sinnott and Chris & Megan Korth for hosting recent fundraisers to benefit the ULF! Both in Nebraska, the Sinnott Sand Bar ran its annual volleyball tournament, and the Korths presented the 3rd Annual Paul Korth Memorial ...read more

Michelle Fingeroot

It is with saddened hearts that we share the news that our dear friend and ULF Board Member Michelle Fingeroot passed away on June 16th after a long and brave battle against breast cancer. Our condolences go out to our Board Member Alan Fingeroot and his family. Michelle will be ...read more

New MSAB Members Announced

The United Leukodystrophy Foundation is pleased to announce the addition of four new members to its Medical and Scientific Advisory Board. Their involvement will expand the reach of the ULF, benefit research, and assist patient families: -  Genevieve Bernard, M.D., FRCPC with McGill University -  Joshua Bonkowsky, M.D., Ph.D. with University of ...read more

2017 ULF Grant Cycle Now Open

The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted from June 1 through October 2, 2017. The ULF Medical and Scientific Advisory Board will review applications ...read more