Year: 2015

Well-Deserved Award for Ann Moser

At its conference in Boston in October, ALD Connect announced the new “Ann B. Moser ALD Community Award”, an honor which recognizes unusually impactful contributions to the ALD community at-large or major milestones in the history of the disease. This award was established in recognition of Mrs. Moser’s dedication to leukodystrophy research, education, and newborn screening …

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Happy Birthday, Dr. Moser!

October 4 — Ninety-one years ago today, an extraordinary man was born. We celebrate Dr. Hugo Moser for his pioneering research. At the time of his death in 2007, Dr. Moser was the Director of the Neurogenetics Research Center at the Kennedy Krieger Institute and was a Professor of Neurology and Pediatrics at Johns Hopkins …

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A Walk in the Park for Daniel

Going to be in Dayton, Ohio on October 3rd?  Join in the fun at “A Walk in the Park for Daniel.”  All proceeds benefit the United Leukodystrophy Foundation. Here are the details. Thank you!

Advisory Committee Recommends X-ALD for RUSP!

The Advisory Committee on Heritable Disorders in Newborns and Children Recommends Adrenoleukodystrophy (X-ALD) for RUSP The Adrenoleukodystrophy (ALD) patient and physician community has advocated for years to have ALD added to the Recommended Uniform Screening Panel (RUSP).  RUSP is the list of diseases that the federal government through the Secretary of Health and Human Services recommends …

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New Grant Opportunity

The United Leukodystrophy Foundation is soliciting grant applications to support research in the leukodystrophies. Applications involving any of the leukodystrophies with budgets up to $30,000 (plus up to 10% indirect costs) will be accepted through November 1. The Medical and Scientific Advisory Board will review applications for scientific merit, feasibility, and likelihood to advance the field. …

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