Month: April 2019

Embolden Study for MLD

Worldwide, MLD occurs in 1 in 40,000 people, primarily children.  Early symptoms of MLD include trouble walking, impaired speech, and muscle weakness. The Embolden Study is conducting research for infants and children born with metachromatic leukodystrophy. Study overview: The Embolden Study is evaluating the safety and effects of a study drug on gross motor function (the abilities …

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In Memorial or Honorarium – March 2019

The ULF received donations in memorial or honorarium for the following during the month of March 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at or by calling 815-748-3211. IN HONOR OF Alex Bouley: Terry and Kelly Smith Brazeal Family: Patrick and Pamela Mumey Gregory Brown: Brownie’s …

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