Worldwide, MLD occurs in 1 in 40,000 people, primarily children. Early symptoms of MLD include trouble walking, impaired speech, and muscle weakness. The Embolden Study is conducting research for infants and children born with metachromatic leukodystrophy. Study overview: The Embolden Study is evaluating the safety and effects of a study drug on gross motor function (the abilities …
The ULF received donations in memorial or honorarium for the following during the month of March 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at [email protected] or by calling 815-748-3211. IN HONOR OF Alex Bouley: Terry and Kelly Smith Brazeal Family: Patrick and Pamela Mumey Gregory Brown: Brownie’s …
The ULF received donations in memorial or honorarium for the following during the month of February 2019. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at [email protected] or by calling 815.748.3211. IN HONOR OF Carter Bowman: Katie and Clay Bowman Peter Brownlee: Olinda Kober Alec Jump: James and Leesa Jump …
The ULF received donations in memorial or honorarium for the following during the month of January 2019. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at [email protected] or by calling 815.748.3211. IN HONOR OF Gregory Brown: John and Carol Brown, Mary Wheeler Clark Cutler: Ty Martin Alan Fingeroot: Dan and …
Buy tickets for a chance to win a Disney vacation for 4! Support the United Leukodystrophy Foundation with the purchase of a Magical Memories Disney Raffle ticket. The winner of the raffle will receive $1,050 in Disney gift cards redeemable toward admission, food or souvenirs; 4-night stay in one standard guest room at the Hyatt …
