Month: September 2021

Heather & Holly, ALSP

Share Your Story / September 19, 2021

By Heidi Edwards I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy with spheroids or HDLS. HDLS is now known as Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia, or ALSP. I am also a caregiver for my twin sister Holly who has the …

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In Memorial or Honorarium – August 2021

In Memory or In Honor Donation / September 1, 2021

The ULF received donations in memorial or honorarium for the following during the month of August 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at [email protected] or by calling 815-748-3211. in honor of Daxton Wallace Sandy Wallace Gregory Brown John C. Brown Jones Kim Lia …

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