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Year: 2021

Heather & Holly, ALSP

By Heidi Edwards I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy with spheroids or HDLS. HDLS is now known as Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia, or ALSP. I am also a caregiver for my twin sister Holly who has the …

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In Memorial or Honorarium – July 2021

The ULF received donations in memorial or honorarium for the following during the month of July 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. in honor of Daxton WallaceSandy Wallace Henry CrawleyThomas Carter Ian ZavodnickJacquelyn Zavodnick M.D.Jason Homer in …

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Poxel Announces New Strategic Direction with Increasing Focus on Rare Metabolic Diseases Following Recent Achievements

Download as PDF July 12, 2021 Following the recent approval of TWYMEEG® (Imeglimin) in Japan and associated potential future revenues, Poxel to accelerate and expand rare metabolic disease programs leveraging existing platforms and proven capabilities Poxel to advance its deuterated thiazolidinediones (dTZD) and direct adenosine monophosphate-activated protein kinase (AMPK) activator platforms in rare metabolic diseases …

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In Memorial or Honorarium – June 2021

The ULF received donations in memorial or honorarium for the following during the month of June 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. in honor of Ashley WolfJohn Wolf Daxton WallaceSandy Wallace FiaLian Hobden Hunter GladdingCasandra CarrickHappy Birthday …

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In Memorial or Honorarium – May 2021

The ULF received donations in memorial or honorarium for the following during the month of May 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211. in honor of Aidan LodgeSusan Lodge Alex HilesJackie Bowman Daxton WallaceSandy Wallace Ian ZavodnickJacquelyn Zavodnick …

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In Memorial or Honorarium – April 2021

The ULF received donations in memorial or honorarium for the following during the month of April 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Aidan ChapleauRobert KiddBarry MacDonaldMarg MacDonald All those fighting leukodystrophies and their loved onesClaudette Alice …

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Axel Riordan, MLD

By Alexandra Worth Axel Riordan was born October 15, 2017. He was a healthy growing boy, hitting all his milestones on time. Around 18 months old Axel started developing problems while walking; locking knees, stumbling, eventually falling a lot. It all progressed slowly at first so at his two-year checkup with his pediatrician I mentioned …

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In Memorial or Honorarium – March 2021

The ULF received donations in memorial or honorarium for the following during the month of March 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815.748.3211. IN HONOR OF Alec JumpJames Jump Leesa Jump  Alex Bouley Charna Levine  Brad Baumann Burdetta Baumann Bernard Baumann  Brad …

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