The ULF is happy to share this information on behalf of Vigil Neuro. Contact information is listed below for more information. Natural History Study in Adult-Onset Leukoencephalopathy With Axonal Spheroids and Pigmented Glia (ALSP) A Study of VGL101 in Patients With Adult-Onset Leukoencephalopathy With Axonal Spheroids and Pigmented Glia If you are interested in learning […]
Two ALSP Studies Now Recruiting Read More »
ULF received donations in memorial or honorarium for the following during the month of January 2024. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at office@ulf.org or by calling 815-748-3211 In honor of Daxton Wallace Sandra Wallace Kenan Spencer Witczak Jennifer Walker Leon Machado Wilcox Lee
In Memorial and Honor – January 2024 Read More »
The ULF is happy to share this press release on behalf of Forge Biologics regarding their clinical trial for patients with Krabbe. Here is a preview but click the link below to read the full press release. UPDATE: As of Tuesday, January 30: The ACHDNC has recommended the addition of Krabbe disease to the RUSP!
