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WEBINAR: Meet The Ambassadors
September 8 @ 1:00 pm - 2:00 pm
At ULF’s June conference, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy, and are therefore, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost, alone, and uncertain as to where to turn.
The Ambassador Program formalizes and expands the support ULF has been providing to the community for so many years. Through regional and local Ambassadors, we guide patients and families through their journey at their own pace. This is done through offering education, tools and resources specifically designed to help those who are affected by leukodystrophy, so they are better informed and the sense of feeling so alone is reduced. You will meet our Ambassadors and learn about their backgrounds and commitment to supporting other affected patients and families.