Rare Disease Day is a global initiative held on the last day of February each year to spotlight rare diseases and amplify the voices of those affected worldwide. Celebrated in over 100 countries, the National Organization for Rare Disorders (NORD) serves as the official U.S. sponsor of Rare Disease Day.

Once again, NORD has launched the Show Your Stripes campaign, a movement that embraces the zebra as the unofficial symbol of the rare disease community—reminding medical professionals that when they hear hoofbeats, sometimes it’s a zebra, not a horse. This represents the uniqueness of rare disease patients and the uncommon answers they seek.

With the success of the LeukoAware campaign introduced this past September for Leukodystrophy Awareness Month, the United Leukodystrophy Foundation (ULF) is proud to provide our patient advocacy groups and community members with a Rare Disease Day social media toolkit. This resource will help unify the leukodystrophy community with the broader rare disease movement for this important global event.

Included in the toolkit are leukodystrophy and rare disease infographics and sample social media posts that can be shared across your networks leading up to and on Rare Disease Day, February 28. The LeukoAware branding has been thoughtfully adapted to align with this year’s Show Your Stripes campaign, reinforcing our solidarity with the larger rare disease community while continuing to raise awareness for those affected by leukodystrophy.

We invite you to join us in this initiative by utilizing the complimentary toolkit. Together, we can make a meaningful impact in advocating for those living with leukodystrophy and rare diseases worldwide.

Thank you for your support and for joining our efforts!