BOARD OF DIRECTORS: Treasurer
Donna Skwirut
Palos Park, Illinois
Donna holds a Master of Business Administration in Finance from Robert Morris University Illinois.
A big believer in awareness and research, she is a self-motivated, strong leukodystrophy advocate.
ULF has been part of Donna’s family since 2009. Ever since her niece has been diagnosed with Vanishing White Matter disease (VWM), she’s been administrating VWM’s Facebook page, keeping the VWM community together and informed.
Her favorite motto is “alone we are rare, but together we are strong.” Along with being a leukodystrophy advocate, Donna is a wife, and mom of four children.