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  • Caregivers Support Group

    https://us02web.zoom.us/meeting/register/tZ0ucu-trjgsGNcfKkX2yML4FA9sCaqstRC2

  • Caregivers Support Group

    https://us02web.zoom.us/meeting/register/tZ0qd-uqpjgoHtPBh2F91AO9VMZlvMMNx0TD

  • Cure LBSL: Patient & Scientific Conference

    The Harry and Jeanette Weinberg Building at 1741 Ashland Avenue, Baltimore, MD 21205

      The Harry and Jeanette Weinberg Building at 1741 Ashland Avenue, Baltimore, MD 21205 Please join the Kennedy Krieger Institute and Cure LBSL as they co-host a weekend of hope, updates, and education at the 4th biannual LBSL International Conference.   Leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation – or LBSL - …

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  • Caregivers Support Group

    https://us02web.zoom.us/meeting/register/tZErcOGorDktGtTXhhDyS4CYudQYODskfGL1

  • Elise’s Corner: AXD Family Summit 2024

    Children's Hospital of Philaelphia

    https://axdsummit2024.com Connections that Matter. The AxD community - patients, scientists, clinicians, and advocates - will be meeting August 2 - 4, 2024 in Philadelphia at CHOP. From the organizers: The AxD Summit will take place beginning the evening of Friday, August 2, and continue all day Saturday, August 3, at The Children's Hospital of Philadelphia! …

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  • Featured

    WEBINAR: Meet The Ambassadors

    Virtual

    At ULF’s June conference, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy, and are therefore, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost, alone, and uncertain as to where …

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