Name: Upcoming Webinar: Activities and Fitness for the whole family
Start: 2026-03-22T14:00:00+00:00
End: 2026-03-22T15:00:00+00:00

January 2026
Featured January 18 @ 2:00 pm UTC-5

ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult

Catherine (Catie) Becker is a Pediatric Nurse Practitioner at Massachusetts General Hospital (MGH). Catie received her master’s degree in Pediatric Acute/Chronic Advanced Practice Nursing from the University of Pennsylvania. She has worked in the MGH Leukodystrophy clinic since 2011, working with a multidisciplinary team caring for both pediatric and adult patients with leukodystrophy. Presented by: …

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January 19 @ 8:00 pm UTC+0

Caregiver Support Group 1/19/26

Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Ambassadors, Margaret Halter and Roger Locy, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both rewarding …

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February 2026
February 8 @ 1:00 pm UTC+0

Caregiver Support Group 2/8/26

Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers of families affected by leukodystrophies. Hosted by ULF Board Member Marcie Flores and ULF Ambassador Jamie Barlow, this group provides a safe and welcoming space for caregivers to connect, share experiences, and find mutual support. Caring for a loved one with leukodystrophy can be both …

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March 2026
Featured March 22 @ 2:00 pm UTC+0

Upcoming Webinar: Activities and Fitness for the whole family

REGISTRATION AND DETAILS COMING SOON! Taking care of yourself with a healthly diet, exercise, and activities or simple things that can help you change up your day and give your attitude a lift…join us so you can look at the opportunities available to your family! Presented by: Hosted by: ULF Ambassador United Leukodystrophy Foundation Who …

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ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult

Caregiver Support Group 1/19/26

Caregiver Support Group 2/8/26

Upcoming Webinar: Activities and Fitness for the whole family

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