Please register for a Vigil Neuroscience hosted community webinar to acknowledge a year of progress in ALSP. This webinar will provide updates on the IGNITE and ILLUMINATE studies and include a special presentation from expert, Dr. Florian Eichler, on adult leukodystrophies (ALSP) and the importance of leveraging the patient voice to help advance research and …
Vigil Neuro Community Webinar: A Year of Progress in ALSP Read More »
We look forward to having you join us! Join us as we connect with other caregivers to discuss ways on coping with common stressors that caregivers face on a regular basis. This is a safe, non-judgemental environment that we welcome conversations and support within the leukodystrophy community. Hosted and Moderated by Marcie Flores The sessions …
https://us02web.zoom.us/j/89702283247?pwd=azFUYkV0YVJxVnFkOEtvSTNZMmkxUT09
https://us02web.zoom.us/j/84341309797?pwd=WnE0S3BFYkdNZ1N0L1lVSEdmQy95QT09
Join us for an educational and discussion webinar focused on recognizing Caregiver Burnout and ways to take care of yourself - as you continue to take care of your loved one with leukodystrophy. Panelists: Marla Chapleau, mother to Aiden affected by MLC David Flores, father to Joshua affected by 4H Margaret Halter, wife to John …
https://us02web.zoom.us/meeting/register/tZcoduqprDgrHd1737IA0GXtrb5fOpQTtqWS
https://us02web.zoom.us/meeting/register/tZ0ucu-trjgsGNcfKkX2yML4FA9sCaqstRC2
https://us02web.zoom.us/meeting/register/tZ0qd-uqpjgoHtPBh2F91AO9VMZlvMMNx0TD
**This session will be geared towards fathers for Father's Day** https://us02web.zoom.us/meeting/register/tZYrfu-upzovGtH_E8PNaaLHbxNoeWjqbEky
For more information: https://adld.center/
