The CTX Alliance is hosting their first international scientific meeting exclusively dedicated to cerebrotendinous xanthomatosis (CTX). Their goal is to catalyze much-needed international basic research and clinical collaborations for CTX and to advance our understanding for improved outcomes for CTX patients and their families. Meeting agenda features lectures and discussions from renowned CTX researchers, medical …
We look forward to having you join us! Join us as we connect with other caregivers to discuss ways on coping with common stressors that caregivers face on a regular basis. This is a safe, non-judgemental environment that we welcome conversations and support within the leukodystrophy community. Hosted and Moderated by Marcie Flores The sessions …
How To: Community Awareness Events The Power of the Community Join us as we illustrate and expand on the many ways you can spread leukodystrophy awareness and raise funds for the cause! Energize your local community by organizing an awareness event. Dr. Mousumi Bose, a ULF Board of Directors Member, rare disease researcher, and a …
We look forward to having you join us! Join us as we connect with other caregivers to discuss ways on coping with common stressors that caregivers face on a regular basis. This is a safe, non-judgemental environment that we welcome conversations and support within the leukodystrophy community. Hosted and Moderated by Marcie Flores The sessions …
