The ULF is proud to be an exhibitor of the 2023 National Organization for Rare Disorders, Inc. (NORD) Breakthrough Summit taking place in Washington, DC on October 16-17. This conference is one of the largest multi-stakeholder events in the #RareDisease community, connecting leaders with industry experts for two days of inspiring sessions and networking opportunities. …
Kendra Scott Shop online: Wednesday, 10/18 & 10/19 and Kendra Scott will provide a 20% giveback to the ULF of all orders placed with Promo Code: GIVEBACK-FAHUE Through the use of natural materials, including genuine stone and shell, Kendra Scott creates quality, affordable luxury products that make fashion and its trends truly accessible.
We look forward to having you join us! Join us as we connect with other caregivers to discuss ways on coping with common stressors that caregivers face on a regular basis. This is a safe, non-judgemental environment that we welcome conversations and support within the leukodystrophy community. Hosted and Moderated by Marcie Flores The sessions …
