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Calendar of Events
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Cure LBSL: Patient & Scientific Conference
The Harry and Jeanette Weinberg Building at 1741 Ashland Avenue, Baltimore, MD 21205 Please join the Kennedy Krieger Institute and Cure LBSL as they co-host a weekend of hope, updates, and education at the 4th biannual LBSL International Conference. Leukoencephalopathy with brainstem and spinal cord involvement and lactate elevation – or LBSL - …
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Caregivers Support Group
Caregivers Support Group
https://us02web.zoom.us/meeting/register/tZErcOGorDktGtTXhhDyS4CYudQYODskfGL1
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Elise’s Corner: AXD Family Summit 2024
https://axdsummit2024.com Connections that Matter. The AxD community - patients, scientists, clinicians, and advocates - will be meeting August 2 - 4, 2024 in Philadelphia at CHOP. From the organizers: The AxD Summit will take place beginning the evening of Friday, August 2, and continue all day Saturday, August 3, at The Children's Hospital of Philadelphia! …