The ULF and ICON presents a Live Webinar Series for Leukodystrophy Families Clinical Trials are crucial to the advancement of disease research in so many ways. Participating in a trial can be a tricky decision for families to make, especially if the affected person is a child, and the process isn't always smooth sailing. The …
Two-Part Clinical Trials 101 Live Webinar Series Read More »
The ULF and ICON presents a Live Webinar Series for Leukodystrophy Families Clinical Trials are crucial to the advancement of disease research in so many ways. Participating in a trial can be a tricky decision for families to make, especially if the affected person is a child, and the process isn't always smooth sailing. …
Two-Part Clinical Trials 101 Live Webinar Series Read More »
Plan to join the free ALSP Community Webinar on January 26! Dear community members, On January 26th, 2023, from 12:30 -1:30 PM EST United Leukodystrophy Foundation will join with other leaders in patient advocacy for a very special ALSP update webinar update that is being sponsored by Vigil Neuroscience, a clinical-stage biotechnology company …
At ULF’s June conference, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy, and are therefore, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost, alone, and uncertain as to where …
