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September is Leukodystrophy Awareness Month

Welcome to LeukoAware©, an initiative dedicated to raising awareness and support for those affected by leukodystrophy. Throughout September, we aim to educate people about leukodystrophies, amplify the voices of those impacted, and drive crucial support for ongoing research and resources. We invite you to join us in this mission by sharing information, donating, or getting involved with our organization.

Together, we can make a significant difference in the lives of those affected by Leukodystrophy and move closer to a future with better treatments and hope for a cures.

Thank you for your support and for joining our efforts.

30 days. one mission.

Together, we can raise awareness, fund programs, and drive hope forward.

The ULF LeukoAware Team is your chance to rally friends, family, and colleagues to help accelerate patient quality of life and find lifesaving cures.

How it works:

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Sign up to join our ULF LeukoAware Team

<img decoding="async" class="xz74otr x15mokao x1ga7v0g x16uus16 xbiv7yw lazyload" data-src="https://static.xx.fbcdn.net/images/emoji.php/v9/t51/1/16/2714.png" alt="✔" width="16" height="16" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" style="--smush-placeholder-width: 16px; --smush-placeholder-aspect-ratio: 16/16;" /><noscript><img decoding="async" class="xz74otr x15mokao x1ga7v0g x16uus16 xbiv7yw" src="https://static.xx.fbcdn.net/images/emoji.php/v9/t51/1/16/2714.png" alt="✔" width="16" height="16" />

Create your personal fundraising page

<img decoding="async" class="xz74otr x15mokao x1ga7v0g x16uus16 xbiv7yw lazyload" data-src="https://static.xx.fbcdn.net/images/emoji.php/v9/t51/1/16/2714.png" alt="✔" width="16" height="16" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" style="--smush-placeholder-width: 16px; --smush-placeholder-aspect-ratio: 16/16;" /><noscript><img decoding="async" class="xz74otr x15mokao x1ga7v0g x16uus16 xbiv7yw" src="https://static.xx.fbcdn.net/images/emoji.php/v9/t51/1/16/2714.png" alt="✔" width="16" height="16" />

Invite your network to give and spread the word

The top 5 fundraisers will be recognized on our social media and website!

Even if you can’t fundraise, you can support by donating or sharing our link, every action counts! Join the team today, CLICK HERE!

Awareness Made Easy: Download Your Resources

These resources are designed for you to share and spread awareness about leukodystrophy within your networks. Just click the links below to download.
Get started raising awareness today!

ATT: Patient Advocacy Organizations

Access your LeukoAware Campaign Toolkit today!