Are you newly diagnosed?

Our Goal is $5,000 and we need your help!

Create a team on our Give Butter platform, and raise funds to support the mission during Leukodystrophy Awareness Month!

Sharing your story is the best way to spread awareness. With your help, we can Lick Leukodystrophy! When we share our journeys with leukodystrophy, we put faces to the disease that affects so many families. Spreading awareness and raising funds means more research toward improved therapies, earlier diagnosis, and the hope for a cure. As a thank you, we will give out two ULF prizes: one to the team that raises the most funds, and one to the team that has the most donors!

If you have any questions or problems creating your team, please send us an email at

How to create a team

Step 1: Go to

Step 2: Click on the “Create a Team!” button below the Lick Leukodystrophy header.

Step 3: Log in, or create an account. You can join via Facebook, or create an account with your email!

Step 4: Edit your page to include your story, and then share your page to start fundraising!

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