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Caregiver Support Groups
2025
Caregiver Online Support Group
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers…
Caregiver Online Support Group
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers…
Caregivers Support Group
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers…
Caregivers Support Group
Join the United Leukodystrophy Foundation (ULF) for a virtual support group designed specifically for caregivers…
Webinars
2025
ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence
Digestive issues related to leukodystrophy can be challenging across the ages and particularly with children….
Date TBD Upcoming Webinar Topics:
• First Aid Topics for Special Needs
• The Guardianship Transition: Minor Child to Legal Adult
The recordings of past webinars are posted to the ULF Office YouTube Channel.
2024
- Sunday, March 3, 1 PM Central: Caregivers Burnout Panel (Recording)
- Sunday, November 3, 1 PM Central: Adaptive Toys / Games (Recording)
- Sunday, December 1, 1 PM Central: Mental Health over the Holidays (Recording)
