Are you newly diagnosed?

The ULF is dedicated to offering families affected by leukodystrophy resources to thrive. Through our live webinar series and support groups, we hope that families will benefit from sharing knowledge and experiences with each other. As we continue to grow this program, we will post upcoming dates for webinars and support groups here.

Wednesday, October 27th, 7 PM Central:
Genetic Testing for Leukodystrophies and an Introduction to the Science Behind Gene Therapy. Presented by Rachel Logan, Genetic Counselor, Children’s Healthcare of Atlanta.
Register here:

Wednesday, November 17th, 7 PM Central:
The Siblings Experience. Presented by Liam and Alex Chapleau (MLC).
Register here:

Wednesday, December 1st, 7 PM Central:
Hope and Resilience Through the Holidays. Presented by Kari Taylor, Cornerstone of Hope Lima
Register here:

The 2022 schedule will be posted in December.

Scroll to Top