Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Jan 18 Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 Feb 8 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 2/8/26 View Calendar Recent Posts ULF Awards $33,000 Research Grant to Advance Gene Therapy for H-ABC Historic Expansion of Newborn Screening Includes MLD Eden’s Story: Helping Families and Supporting Research Through Her Legacy Hope in Action: ULF Board Member’s Son Receives World’s First SLC6A1 Treatment Strength for Today, Hope for Tomorrow: Laila’s Story A Family’s Journey with ALD – Robert & Nancy New Global Guidelines Issued for Vanishing White Matter (VWM) Research Summaries October 2025 New Global Patient Registry for MicrogliopathiesGlia New Research: Endogenous Repair in Vanishing White Matter Read More News Share your story Read Stories
Featured 2:00 pm - 3:00 pm UTC-5 ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult
