upcoming events

Event Information:

  • Fri
    12
    Jun
    2020

    Rare of the rare expert meeting

    UK

    MPS Society

    The expert meeting will bring together all the knowledge from across the lysosomal storage disease and other rare disease community to share information and understanding, to find out where the gaps in knowledge are and to find out how we can fill these gaps. Open to experts only.
    Contact us for more
    MPS_35years_20170708_031_web.jpg

    https://www.mpssociety.org.uk/expert-events


Latest news


Share your story

Sam Buck, VWM

“Until February 2013, our 2-year-old son Sam was completely normal child, no problems with his pregnancy or birth, he met every milestone, and overall was…
Read More
Scroll to Top