Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Nov 17 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 11/17/25 Dec 14 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 12/14/25 Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 Feb 8 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 2/8/26 View Calendar Recent Posts In Memorial and Honor: May – September 2025 Teagan’s Story Positive Results Announced for Alexander Disease Clinical Trial Kim’s Story Moa’s Story The Hidden Impact of Vanishing White Matter (VWM) on Families Johana’s and Ella’s Story Minoryx’s Leriglitazone MAA for cALD Validated by EMA In Memorial and Honor: March and April 2025 The Translational Landscape of Reactive Astrocytes Reveals the Impact of eIF2B-mediated Dysregulation in VWM Disease Read More News Share your story Read Stories
