Family Conference

registration is now open!

2024 ULF Family Conference
Friday and Saturday, June 28 and 29
Eaglewood Resort and Spa
Itasca, Illinois, USA
(accessible by O’Hare International Airport)



ABOUT

The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.