Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Feb 8 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 2/8/26 View Calendar Recent Posts New Research: Endogenous Repair in Vanishing White Matter Calyx: New Clinical Trial in cALD In Memorial and Honor: May – September 2025 Teagan’s Story Positive Results Announced for Alexander Disease Clinical Trial Kim’s Story Moa’s Story The Hidden Impact of Vanishing White Matter (VWM) on Families Johana’s and Ella’s Story Minoryx’s Leriglitazone MAA for cALD Validated by EMA Read More News Share your story Read Stories
