Obituaries in 2018

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2018. Bamberger, Helen (December 24, 1932 - August 27, 2018) Best, Thomas Tom, age 50, proceeded in death by his twin brother Tim in 2008. Both who had PMD leukodystrophy, were adopted at age 6 more

New! Leukodystrophy Awareness T-Shirt Fundraisers

Spread the word about Leukodystrophy in your community AND support medical research with the purchase of our newest t-shirt design. Multiple colors and sizes available! All proceeds will support vital medical research! By partnering with Bonfire, we are able to fundraise as well as have the printing and distribution of the more

Obituaries in 2016

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2016. Adler, Marilyn Alm, Stanley Lester Boswell, Elizabeth (Betty) Carpenter Brenner, Michael H. Brown, George W., Jr. Carusone, Vincenzo Clark, Liam David Conroy, Geoffrey Leland Cooper, Deborah Ann Gillette, Wyatt Hagan, David Weldon Haber, Jay Howard Hanuscin, Agnes Hrusovsky Jaeger, Stuart Kieffer, Nora St. Marian Goretti Lebowitz, Marvin Lipe, more

Obituaries in 2017

It is with our deepest condolences that we recognize members of our ULF family that have passed in 2017. Bloxom, Thomas Duane Borodychuk, Olivia Kay Bostock, Mark Cooper, Kelly Joyce Cotsipoulos, Chris Dean, Kolton Kyle Devers, Tyler Michael Caine Dorn, Joan Edwin, David Engbers, Gabriel Jordan Ewen, Barbara M. Fleming Family Harris, Rick Lee LaPlace, Janet Leblang, David Maloney, William "Bill" Michael Meyer, Andrew Moore, Latavia Michelle Moore Moore, more

In Memorial or Honorarium – December 2017

The ULF received donations in memorial or honorarium for the following during the month of December 2017. We apologize for any inadvertent omission or misspellings. Please notify us if we have made a mistake at or by calling 815.748.3211. IN HONOR OF Blake Andrews: Kyle Roan Phillip Andrews: Kyle Roan Harrison Botta: Erik and Jennifer Botta The more

2017 Research Grant Awardees

Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. The number of grant applications have consistently grown in the past years, and this year was no exception. Submissions from all over the country as well as internationally were more

2017 Benefit Drawing Winners

This year's Annual ULF Benefit Drawing winners have been chosen! We had a special Halloween visitor to the office this year to pull the winning tickets: 2-year-old Clark dressed up as Carl from the movie UP!                   The winners are... • $500 Visa Gift Card - Patrick M. of Virginia • Rolling iPad Stand more

Dr. David Edwin

We at the ULF wish to send our sympathy to the family of one of our main contributors to our annual ULF family conference who passed away in June. His obituary is below. Dr. Edwin has been a contributor addressing the psychological needs of our families and how they can cope with more

Dr. Wolfgang Koehler wins 2017 Dr. Hugo Moser Service Award

Congratulations to Dr. Wolfgang Koehler of Fachkrankenhaus Hubertusburg gGmbH in Wormsdorf, Germany!  He is the recipient of the 2017 Dr. Hugo Moser Service Award for his decades-long commitment to the United Leukodystrophy Foundation and to affected families and for his advancements in leukodystrophy research. This award was presented to Dr. Koehler more