Sponsored in part by


The 2017 ULF Scientific Symposium and Family Conference was held at The Commons Hotel on the lovely campus of the University of Minnesota in Minneapolis July 27-29. The United Leukodystrophy Foundation is grateful for the conference support from Retrophin, Leadiant, Shire, bluebird bio, and NeuroVia.

Attendance this year was twice that of 2016!  There were fascinating presentations, informal roundtable discussions, networking, live and silent auctions, and several opportunities for families and medical professionals to mingle and interact.

We congratulate Dr. Wolfgang Koehler of Germany, who received the 2017 Dr. Hugo Moser Service Award on Friday evening, for his decades-long commitment to the ULF and to affected families and for his notable leukodystrophy research advancements!

To make it more affordable for families, attendee fees were drastically reduced this year and will be honored again next year. There was a supervised children’s activity room on Friday and Saturday with games, movies, toys, and art projects.

As we move our Conference around the country, we look forward to your joining us June 23-25, 2018 in Charlotte, North Carolina!