2018 Family Conference & Scientific SymposiumRegister Now!

As we move our Conference around the country, we look forward to your joining us June 23-25, 2018 in Charlotte, North Carolina!

Register Now: Family Conference: June 23 and June 24, 2018

Adult, Member $100 | Adult, Non-Member $150 | Teen (ages 13 – 18) $50 | Children (up to age 12) Free

Register Now: Scientific Symposium: June 24 and June 25, 2018 (for medical professionals only)

Medical Professionals $300

555 South McDowell Street, North Tower, Charlotte, NC 28204

Call 1-877-822-3224 and ask for the ULF 2018 room block, or book online at:

  • Charlotte-Douglas International Airport (CTL) is approximately 7.5 miles/13 minutes away from the hotel.
  • A taxi from the airport to the hotel is approximately $25. An UBER ride is approximately $15 for a trip from the airport to the hotel.
  • IMPORTANT NOTE: The Sheraton and Le Meridien are two, connected hotels. Our group rate room block is within the Sheraton Hotel, while our conference itself is taking place on the Le Meridien side.

A BIG Thank You to Our Event Sponsors: ShireLeadiant BiosciencesRetrophinRegenxBio  |  Bluebird Bio  |  Minoryx  |  Calico Labs  |  Viking Therapeutics  |  NeuroVia

New! Teen Program: This year, teens will have the option to participate in sessions that are geared specially to them and participate in other age-appropriate activities. More information on the Teen Program will be available on our website at a later date.

Optional Day Care: We will offer Day Care services for kids up to the age of 12 at no additional charge. The Day Care option will be available during the Family Conference session times, and parents/guardians will need to pick up their child for meal times. Please keep in mind that while Day Care Volunteers will be adults with child care experience, they are not trained medical professionals. Parents/Guardians will need to leave emergency contact phone numbers for the volunteers to reach out should the need arise.

Silent Auction Donations: We welcome conference attendees and speakers to bring an item or two (or four) to include in our silent auction. We encourage that these items be representative of where you are from – especially if you are traveling internationally! Any donation is welcome and appreciated. If you are planning on bringing a silent auction item, please give us a heads up! Together we can make this the biggest silent auction yet!

Team Fundraising LogoHelp support the United Leukodystrophy Foundation’s Medical Research Grants and Programming with Team Fundraising!

The team that submits the most money to the ULF by June 1, 2018 will receive 2 comped registration fees for the 2019 conference, ULF t-shirts, vinyl car decals, and water bottles as well as bragging rights for the year with the “Friend of the ULF” trophy. Winner will be announced during the 2018 conference in Charlotte, NC.

Learn more.

See What’s Waiting for You in Charlotte