The 2017 Annual ULF Scientific Symposium and Family Conference will be held at The Commons Hotel, a boutique venue on the campus of the University of Minnesota in Minneapolis, the last week of July. The United Leukodystrophy Foundation is grateful for the conference support from Retrophin, bluebird bio, and NeuroVia.

Save these dates and make your flight reservations early for the best deals:

     Scientific Symposium: Full day July 27 & half day July 28

     Family Conference:      Full days July 28 & 29


On Thursday evening, there will be an opportunity for families and medical professionals to mingle during a reception and informal dinner.

Join us for fascinating presentations, informal roundtable discussions, live and silent auctions, and networking. Learn about the latest medical advances in the leukodystrophy field.

To make it more affordable for families, attendee fees have been drastically reduced this year. The 2-day Family Conference will be $90 for a ULF member, $100 Early Bird per non-member, and $200 after the Early Bird deadline of June 30th. There is no fee for children to attend, and there will be a supervised children’s activity room on Friday and Saturday with games, movies, toys, and art projects. Volunteers are needed for the registration table and childcare. Fees are waived for volunteers. For additional details on the Family Conference, click here.

The registration fee for medical professionals and corporate representatives is $275. For additional information on the Scientific Symposium, click here.

When making a reservation at The Commons Hotel, be sure to ask for the United Leukodystrophy Foundation room block for the reduced room rate of $129 per night plus taxes. Reserve your room on-line or call the hotel at 612-362-6608. Accessible rooms are available. There is limited free parking at the hotel, plus a parking structure across the street with fees that max out at $12/day.

The University Recreation and Wellness Center is right across the street from our hotel, and free day-passes are available at the front desk. The Rec Center offers 6 floors of fitness equipment, wall climbing, swimming, and more.

You might wish to add on extra days to your trip to enjoy some of the activities and attractions in Minneapolis, such as the Mill City Museum,  Sculpture Garden, U.S. Bank Stadium (home of the 2018 Super Bowl), Science Museum of MN, and Minnehaha Park with its 55-foot-high waterfall. The city is connected by the Light Rail System, an inexpensive, accessible way to travel through town. There is a rail station steps from our hotel with easy access to downtown, Mall of America, and the airport.

Although not all speakers are confirmed, registration is now open. As more details are finalized, they will be posted here. We look forward to seeing you in July!


To register for the Family Conference, click here.

To register for the Scientific Symposium, click here.