Month: February 2021

Amera Reed, ACER3

by Shannon Reed Amera is our sweet 3 year old daughter who battles an extremely rare genetic disease called ACER3 related early childhood onset progressive  Leukodystrophy. There are only about 20 known cases of this type worldwide!  Our daughter was diagnosed with this progressive disease at age 2. She was initially presumptively diagnosed with other …

Amera Reed, ACER3 Read More »

In Memorial or Honorarium – January 2021

The ULF received donations in memorial or honorarium for the following during the month of January 2021. We apologize for any inadvertent omittance or misspellings. Please notify us if we have made a mistake at or by calling 815.748.3211. IN HONOR OF Aryabella Haeger Shannon Wright – In behalf of Star Chaser Crafts  Aveline Brendel Lyndsay …

In Memorial or Honorarium – January 2021 Read More »

We are Hiring!

Are you experienced at development and fundraising and looking to work for a mission driven organization? With the ability to work remotely, the United Leukodystrophy Foundation (ULF) is seeking a dynamic Executive Director to embrace and move the Strategic Plan forward, side by side with dedicated and experienced staff members.

Scroll to Top