Conference

Save the Date!

We look forward to your joining us June 27-29, 2019 in Itasca, IL! Mark your calendars now for the 2019 United Leukodystrophy Foundation Annual Scientific Symposium and Family Conference.

We are happy to announce that our 2019 conference will be held at the scenic Eaglewood Resort and Spa near Chicago, IL. Eaglewood is a unique Midwest destination that caters to spa goers, golfers, fun loving couples looking for a romantic getaway, and families seeking a nearby destination with exciting activities. This Midwest resort is highly inspired by nature, as well as the legendary work of Frank  Lloyd Wright, who is known for his Prairie Path style architecture throughout the Chicagoland area.

Guests experience interior spaces that  capture the essence of its beautiful surroundings, with naturally lit meeting and guest rooms overlooking the remarkable 18-hole golf course.

Eaglewood Resort & Spa

1401 Nordic Road, Itasca, IL 60143
877.285.6150

More details will be announced in Fall 2018.


Teen Program: This year, teens will have the option to participate in sessions that are geared specially to them and participate in other age-appropriate activities. More information on the Teen Program will be available on our website at a later date.

Optional Day Care: We will offer Day Care services for kids up to the age of 12 at no additional charge. The Day Care option will be available during the Family Conference session times, and parents/guardians will need to pick up their child for meal times. Please keep in mind that while Day Care Volunteers will be adults with child care experience, they are not trained medical professionals. Parents/Guardians will need to leave emergency contact phone numbers for the volunteers to reach out should the need arise.

Silent Auction Donations: We welcome conference attendees and speakers to bring an item or two (or four) to include in our silent auction. We encourage that these items be representative of where you are from – especially if you are traveling internationally! Any donation is welcome and appreciated. If you are planning on bringing a silent auction item, please give us a heads up! Together we can make this the biggest silent auction yet!


Team Fundraising LogoHelp support the United Leukodystrophy Foundation’s Medical Research Grants and Programming with Team Fundraising!

The team that submits the most money to the ULF by June 1, 2019 will receive 2 comped registration fees for the 2020 conference, ULF t-shirts, vinyl car decals, and water bottles as well as bragging rights for the year with the “Friend of the ULF” trophy. Winner will be announced during the 2019 conference in Itasca, IL.

Learn more.


A BIG Thank You to Our 2018 Event Sponsors: ShireLeadiant BiosciencesRetrophinRegenxBio  |  Bluebird Bio  |  Minoryx  |  Calico Labs  |  Viking Therapeutics  |  NeuroVia