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How To: Community Awareness Events
September 21, 2023
How To: Community Awareness Events
The Power of the Community
Join us as we illustrate and expand on the many ways you can spread leukodystrophy awareness and raise funds for the cause! Energize your local community by organizing an awareness event.
Dr. Mousumi Bose, a ULF Board of Directors Member, rare disease researcher, and a rare disease mom, will share her experience in leveraging the power of her community to raise awareness and funds of peroxisomal disorders. As we celebrate Leukodystrophy Awareness Month, we are opening the conversation on how you could become actively involved in the ULF’s mission to embolden the leukodystrophy community to take charge and educate the world about our rare disease. |
Thursday, September 21st, 2023 at 7pm CST.
Hosted By: Mousumi Bose, Ph.D.
Registration Required – Register here: bit.ly/howtoulf
Registration is required; the session will be recorded and posted to the ULF Office YouTube channel the following day.