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How To: Community Awareness Events

September 21

How to Webinar. The Power of Community

How To: Community Awareness Events

The Power of the Community

Join us as we illustrate and expand on the many ways you can spread leukodystrophy awareness and raise funds for the cause! Energize your local community by organizing an awareness event.

Dr. Mousumi Bose, a ULF Board of Directors Member, rare disease researcher, and a rare disease mom, will share her experience in leveraging the power of her community to raise awareness and funds of peroxisomal disorders. As we celebrate Leukodystrophy Awareness Month, we are opening the conversation on how you could become actively involved in the ULF’s mission to embolden the leukodystrophy community to take charge and educate the world about our rare disease.

Thursday, September 21st, 2023 at 7pm CST.

Hosted By: Mousumi Bose, Ph.D.

Registration Required – Register here: bit.ly/howtoulf

Registration is required; the session will be recorded and posted to the ULF Office YouTube channel the following day.


September 21
Event Categories:


United Leukodystrophy Foundation
View Organizer Website