11th European Conference on Rare Diseases and Orphan Products

Virtual

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Please contact martina.bergna@eurordis.org for more information.

Hunter’s Hope 2022 Medical and Family Symposium

Holiday Valley Resort – Ellicottville, NY

The Hunter’s Hope Medical and Family Symposium is a time for Leukodystrophy families, medical providers, newborn screening lab personnel, industry partners, and researchers from around the world to gather for learning, sharing, and Hope.

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