ALD Connect – Community Call: Cerebral ALD

Please join us for a Cerebral ALD Community Call facilitated by Jesse Torrey on Wednesday, March 3rd, 2021 at 8 PM EST for pre-, post-, and non-transplanted families. Please reach out to info@aldconnect.org if you have any questions.Please use the following link to register: http://events.constantcontact.com/register/event?llr=e8ntkipab&oeidk=a07ehl5mz6sc56f11b1

Cure VCP – Patient Happy Hours

Building upon our successful 2020 Happy Hours, we are pleased to announce our March Happy Hour dates and times! The Happy Hour is a great opportunity for our VCP disease family to connect with one another and share challenges, triumphs and tips, and to discuss what is most important to you, as patients and caregivers.Registration …

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Early Screening of Children for Developmental Delays: How Parents and Providers Can Help

This conversational session is designed to help participants: 1. Increase their awareness and knowledge about early screening while serving as advocates for prevention and intervention in their local communities and agencies. 2. Identify ways to increase their confidence and intent to identify and refer children for intervention earlier rather than later. 3. Learn effective strategies …

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Cure VCP – Patient Happy Hours

Building upon our successful 2020 Happy Hours, we are pleased to announce our March Happy Hour dates and times! The Happy Hour is a great opportunity for our VCP disease family to connect with one another and share challenges, triumphs and tips, and to discuss what is most important to you, as patients and caregivers.Registration …

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Living Rare, Living Stronger NORD Patient and Family Forum

Join NORD for the Living Rare, Living Stronger NORD Patient and Family Forum, an interactive virtual event. Living Rare, Living Stronger is an annual patient-focused conference, providing patients and families with practical tools for living their best lives with rare diseases and opportunities to connect with each other, advocates and other stakeholders. This year’s Forum …

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“Unlock CTX”

Virtual

Have you ever wished you could tell the people who research, develop, and regulate treatments for CTX what’s most important to you? You can! At the “Unlock CTX” Patient-Focused Drug Development Meeting. Now is your chance to help Unlock CTX. 

ASGCT 25th Annual Meeting

The American Society of Gene and Cell Therapy’s (ASGCT) Annual Meeting, celebrating its 25th year in 2022, is the premier event for professionals in gene and cell therapy. The four-day meeting—and one preceding day of Pre-Meeting Workshops—is the best place for people in the field to learn from the latest scientific research, stay up to …

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