The Yaya Foundation for 4H Leukodystrophy – Zoom Hangout for #4HLFamilies
Please join us for a #4HLFamilies Zoom Hangout. To attend, please email christina@yayafoundation4HL.org for an invite with the Zoom link. We look forward to getting together!
Please join us for a #4HLFamilies Zoom Hangout. To attend, please email christina@yayafoundation4HL.org for an invite with the Zoom link. We look forward to getting together!
Have you ever wished you could tell the people who research, develop, and regulate treatments for CTX what’s most important to you? You can! At the “Unlock CTX” Patient-Focused Drug Development Meeting. Now is your chance to help Unlock CTX.
Please join us for a #4HLFamilies Zoom Hangout. To attend, please email christina@yayafoundation4HL.org for an invite with the Zoom link. We look forward to getting together!
ALD Connect Virtual 2021 Annual Meeting and Patient Learning Academy on November 12 and 13, 2021!https://aldconnect.org/calendar/ald-connect-2021-annual-meeting-and-patient-learning-academy-virtual/
Please join us for a #4HLFamilies Zoom Hangout. To attend, please email christina@yayafoundation4HL.org for an invite with the Zoom link. We look forward to getting together!
The American Society of Gene and Cell Therapy’s (ASGCT) Annual Meeting, celebrating its 25th year in 2022, is the premier event for professionals in gene and cell therapy. The four-day meeting—and one preceding day of Pre-Meeting Workshops—is the best place for people in the field to learn from the latest scientific research, stay up to …
The Scientific Symposium is a meeting for research, medical, and industry professionals. The one-day meeting takes place on the day before the Family Conference and allows physicians, researchers, and more to share projects, discuss ideas, and network in a professional setting. At this time, the Scientific Meeting is only open to medical and scientific professionals. …
The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also …
The CTX Alliance is hosting their first international scientific meeting exclusively dedicated to cerebrotendinous xanthomatosis (CTX). Their goal is to catalyze much-needed international basic research and clinical collaborations for CTX and to advance our understanding for improved outcomes for CTX patients and their families. Meeting agenda features lectures and discussions from renowned CTX researchers, medical …
The ULF is proud to be an exhibitor of the 2023 National Organization for Rare Disorders, Inc. (NORD) Breakthrough Summit taking place in Washington, DC on October 16-17. This conference is one of the largest multi-stakeholder events in the #RareDisease community, connecting leaders with industry experts for two days of inspiring sessions and networking opportunities. …