Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. Due to the COVID-19 global pandemic, and the threat this poses to the health and safety of our rare disease community, we are replacing this highly-anticipated event with the Global Genes LIVE! …
Global Genes LIVE! A RARE Patient Advocacy (un)Summit Read More »
Join us for a variety of interactive and educational events, meet-ups, workshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community, while experiencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations, best practices for …
Global Genes LIVE! A RARE Patient Advocacy (un)Summit Read More »
The ULF is proud to be an exhibitor of the 2023 National Organization for Rare Disorders, Inc. (NORD) Breakthrough Summit taking place in Washington, DC on October 16-17. This conference is one of the largest multi-stakeholder events in the #RareDisease community, connecting leaders with industry experts for two days of inspiring sessions and networking opportunities. …
