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United Leukodystrophy Foundation
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  • November 2025
  • Sun 9
    Featured November 9, 2025 @ 2:00 pm UTC-5

    ULF Webinar: First Aid and CPR Webinar: Modified strategies that guide you to care for your child safely and confidently

    Presented by: Christina Schnell Community Services Coordinator St. John Ambulance Hosted by: Marla Chapleau ULF Ambassador United Leukodystrophy Foundation Hello – my name is Christina and as a parent of a child with a disability who has had to navigate the challenges of modifying emergency care standards, I understand the unique needs and concerns families …

    ULF Webinar: First Aid and CPR Webinar: Modified strategies that guide you to care for your child safely and confidently Read More »

  • January 2026
  • Sun 18
    Featured January 18 @ 2:00 pm UTC-5

    ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult

    Catherine (Catie) Becker is a Pediatric Nurse Practitioner at Massachusetts General Hospital (MGH). Catie received her master’s degree in Pediatric Acute/Chronic Advanced Practice Nursing from the University of Pennsylvania. She has worked in the MGH Leukodystrophy clinic since 2011, working with a multidisciplinary team caring for both pediatric and adult patients with leukodystrophy. Presented by: …

    ULF Webinar: The Guardianship Transition: Minor Child to Legal Adult Read More »

  • March 2026
  • Sun 22
    Featured March 22 @ 2:00 pm UTC+0

    Upcoming Webinar: Activities and Fitness for the whole family

    Activities and Fitness for the Whole Family! Join the United Leukodystrophy Foundation for an inspiring and informative webinar designed for families, adults, and children living with Leukodystrophies, as well as the loved ones and friends who walk beside them on this journey. This session will explore meaningful ways to support physical health, emotional well-being, and …

    Upcoming Webinar: Activities and Fitness for the whole family Read More »

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Contact the ULF

1440 W Taylor St, Suite 4297
Chicago, Illinois, 60607, USA
(815) 748-3211
office@ulf.org

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Double Your Donation

Corporate matching gifts are a type of philanthropy in which companies financially match donations that their employees make to nonprofit organizations. Companies usually match donations at a 1:1 ratio, but some will match at a 2:1, 3:1, or even a 4:1 ratio!

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