ALSP Awareness Month
ALSP Awareness Month
ALSP Awareness Month
This is a session for parents of people affected by leukodystrophies, often their caregivers. This session WILL NOT be recorded. Time Mar 30, 2022 07:00 PM in Central Time (US and Canada) Parents of Affected Children, Register here: https://bit.ly/3qZlWxS
An open discussion for families who recently received their leukodystrophy diagnosis. No topic is off limits and we encourage participation at the attendees comfort level. This session WILL NOT be recorded. Time Mar 30, 2022 07:00 PM in Central Time (US and Canada) Adults and Newly Diagnosed Families, Register here: https://bit.ly/3Ga88Xu
Joint webinar series by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is a Specialist in Pediatric Neurology at Vall d'Hebron University Hospital and Principal Investigator in Pediatric Movement Disorders at the Vall d'Hebron Research Institute. Her work aims to improve …
Webinar: ‘Basal ganglia diseases in childhood’ by Belén Perez Dueñas Read More »
***CANCELLED*** Rehabilitation and Mobility Devices, presented by speakers from Children’s Healthcare of Atlanta Apr 27, 2022 07:00 PM in Central Time (US and Canada) Register here: https://bit.ly/3334ujQ
The EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology, including basic science, diagnostic methods, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders.https://epns-congress.com/
The ASGCT Pre-Meeting Workshop What Patients Can Expect in a Gene Therapy Clinical Trial, is taking place on Sunday, May 15 from 1 - 5pm ET in Washington, DC. The workshop is intended for a patient/caregiver/advocate audience to learn more about this process. We hope you will join us for this educational opportunity. There are …
What Patients Can Expect in a Gene Therapy Clinical Trial Read More »
The American Society of Gene and Cell Therapy’s (ASGCT) Annual Meeting, celebrating its 25th year in 2022, is the premier event for professionals in gene and cell therapy. The four-day meeting—and one preceding day of Pre-Meeting Workshops—is the best place for people in the field to learn from the latest scientific research, stay up to …
Educational webinars on rare neurologicial, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is Child Neurologist at the Institute of Neurology Carlo Besta, Milan, Italy. Time May 24, 2022 03:00 PM in Amsterdam, Berlin, …
Webinar: ‘Mitochondrial leukodystrophies’ by Anna Ardissone Read More »
This webinar is geared towards families who have not yet attended a ULF Family Conference. We will cover the basics of what to expect - travel tips, what to do when you get to the hotel, how to check in, what is included in your registration, what to expect during the sessions, and tips on …
ULF Webinar: What to Expect at the 2022 ULF Family Conference Read More »