The EPNS Congress provides an opportunity to learn about the latest developments in the rapidly evolving field of child neurology, including basic science, diagnostic methods, and novel treatments. You can network with colleagues and industry partners all focused on delivering the best possible care for children with neurological disorders.https://epns-congress.com/
The ASGCT Pre-Meeting Workshop What Patients Can Expect in a Gene Therapy Clinical Trial, is taking place on Sunday, May 15 from 1 - 5pm ET in Washington, DC. The workshop is intended for a patient/caregiver/advocate audience to learn more about this process. We hope you will join us for this educational opportunity. There are …
What Patients Can Expect in a Gene Therapy Clinical Trial Read More »
The American Society of Gene and Cell Therapy’s (ASGCT) Annual Meeting, celebrating its 25th year in 2022, is the premier event for professionals in gene and cell therapy. The four-day meeting—and one preceding day of Pre-Meeting Workshops—is the best place for people in the field to learn from the latest scientific research, stay up to …
Educational webinars on rare neurologicial, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). The speaker is Child Neurologist at the Institute of Neurology Carlo Besta, Milan, Italy. Time May 24, 2022 03:00 PM in Amsterdam, Berlin, …
Webinar: ‘Mitochondrial leukodystrophies’ by Anna Ardissone Read More »
This webinar is geared towards families who have not yet attended a ULF Family Conference. We will cover the basics of what to expect - travel tips, what to do when you get to the hotel, how to check in, what is included in your registration, what to expect during the sessions, and tips on …
ULF Webinar: What to Expect at the 2022 ULF Family Conference Read More »
The Rare Drug Development Symposium, in partnership with the Orphan Disease Center of the University of Pennsylvania, brings together rare disease advocacy leaders and researchers to identify barriers to research, envision solutions, and accelerate progress for our communities. This two-day, in-person-only summit offers a unique opportunity to engage in interactive small-group workshops with experts and …
2022 Scientific Symposium Join us at the Eaglewood Resort and Spa on Thursday, June 23rd! The Scientific Symposium is back in-person! We are thrilled to be hosting at the Eaglewood Resort and Spa again this year, and we cannot wait to see you! For more information please visit https://ulf.org/news/scientific-symposium/
2022 Family Conference Join us at the Eaglewood Resort and Spa on Friday and Saturday, June 24th and 25th! It’s official – the ULF Family Conference is back in-person! We are thrilled to be hosting at the Eaglewood Resort and Spa again this year, and we cannot wait to see you! Registration is now open! …
Join us at the Eaglewood Resort & Spa in Itasca, IL, USA. Cocktail hour begins at 5:30 PM — Dinner served at 6:30 PM Program and Auction to follow For more information please visit https://ulf.org/news/mosergala/
The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies. Please contact [email protected] for more information.
