As we approach the holiday season, it is important to remember that holidays can be stressful. This stress can worsen symptoms of a mental health condition, such as depression, anxiety, and loneliness. Please join Sarah Stoney, MSW, LCSW for an informative presentation and discussion on strategies to cope with holiday stress. Sarah Stoney, MSW, LCSW …
At ULF’s June conference, we announced our Ambassador Program. Ambassadors are people who have lived experience with leukodystrophy, and are therefore, the best candidates to understand and help address your needs. You may recall the first time you heard the word leukodystrophy and how you felt. Many feel lost, alone, and uncertain as to where …
Plan to join the free ALSP Community Webinar on January 26! Dear community members, On January 26th, 2023, from 12:30 -1:30 PM EST United Leukodystrophy Foundation will join with other leaders in patient advocacy for a very special ALSP update webinar update that is being sponsored by Vigil Neuroscience, a clinical-stage biotechnology company …
