Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Sep 15 8:00 pm - 9:00 pm UTC+0 Caregivers Support Group 9/15/25 Oct 12 1:00 pm - 2:00 pm UTC+0 Caregiver Support Goup 10/12/25 Nov 17 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 11/17/25 Dec 14 1:00 pm - 2:00 pm UTC+0 Caregiver Support Group 12/14/25 Jan 19 8:00 pm - 9:00 pm UTC+0 Caregiver Support Group 1/19/26 View Calendar Recent Posts The Hidden Impact of Vanishing White Matter (VWM) on Families Johana’s and Ella’s Story Minoryx’s Leriglitazone MAA for cALD Validated by EMA In Memorial and Honor: March and April 2025 The Translational Landscape of Reactive Astrocytes Reveals the Impact of eIF2B-mediated Dysregulation in VWM Disease ALEXANDER DISEASE CAREGIVER Information Atypical Presentation of MLD Without White Matter Changes In Memorial and Honor: February 2025 FDA Approves Ctexli (Chenodiol) for Treatment of Cerebrotendinous Xanthomatosis (CTX) The ULF Board of Directors’ statement regarding the changes to healthcare and research because of reduced NIH funding. Read More News Share your story Read Stories
