Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Mar 16 Featured Featured 3:00 pm - 4:00 pm UTC+0 ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence Mar 17 Featured Featured 7:00 pm - 8:00 pm UTC+0 Caregiver Online Support Group Apr 13 Featured Featured 12:00 pm - 1:00 pm UTC+0 Caregiver Online Support Group May 19 Featured Featured 8:00 pm - 9:00 pm UTC+0 Caregivers Support Group Jun 15 Featured Featured 12:00 pm - 1:00 pm UTC+0 Caregivers Support Group View Calendar Recent Posts Study: Impaired Peroxisomal Beta-Oxidation in Microglia Triggers Oxidative Stress and Impacts Neurons and Oligodendrocytes 28th ASGCT Annual Meeting- Empowering Patients 2025: A Cell and Gene Therapies Summit In Memorial and Honor: January 2025 In Memorial and Honor: October – December 2024 Study: Progression of Spinal Cord Disease in Adult Men With ALD Lentivirus-modified hematopoietic stem cell gene therapy for advanced symptomatic juvenile MLD: a long-term follow-up pilot study A Legacy of Hope: Join Bob & Yvonne in Supporting the ULF Analysis of GFAP Variants in UK Biobank Suggests Underdiagnosis or Incomplete Penetrance of Adult-Onset Alexander Disease Finding Strength in Community: Jen’s Story Vanishing White Matter Disease in Children: An Unusual Association, a Novel Mutation, and a Literature Review Read More News Share your story Read Stories
Featured Featured 3:00 pm - 4:00 pm UTC+0 ULF Webinar: Addressing Digestive Issues from Infancy through Adolescence
