Please note that events are listed for Central Time Zone (Chicago). Upcoming Events Jun 15 Featured Featured 12:00 pm - 1:00 pm UTC+0 Caregivers Support Group View Calendar Recent Posts In Memorial and Honor: March and April 2025 The Translational Landscape of Reactive Astrocytes Reveals the Impact of eIF2B-mediated Dysregulation in VWM Disease ALEXANDER DISEASE CAREGIVER Information Atypical Presentation of MLD Without White Matter Changes In Memorial and Honor: February 2025 FDA Approves Ctexli (Chenodiol) for Treatment of Cerebrotendinous Xanthomatosis (CTX) The ULF Board of Directors’ statement regarding the changes to healthcare and research because of reduced NIH funding. STUDY: Rescue of in vitro models of CSF1R-related adult-onset leukodystrophy by iluzanebart: mechanisms and therapeutic implications of TREM2 agonism FDA Approves First Treatment for CTX, a Rare Lipid Storage Disease STUDY: The natural history of variable subtypes in pediatric-onset TUBB4A-related leukodystrophy Read More News Share your story Read Stories
